About us

The Huntington's Disease Association is the only charity dedicated to providing support information, advice and help to those affected by Huntington's disease across England and Wales. We enable anyone affected by Huntington's to  live their life to their full potential by, 

• Improving care and support 
• Educating families and professionals supporting them 
• Championing the needs of the Huntington's community and influencing decision-makers 

There are an estimated 8,000 people living with a diagnosis of Huntington's disease with a further 32,000 people estimated to be at high risk of inheriting the gene which causes Huntington's disease. 

There is no cure for Huntington's disease. 

We're asking supporters to sign up to our #HD8000 series of challenges over the year to help raise funds for our work.